Team Ella Rocks
A team for APFED
"Team Ella Rocks" is a team to help the American Partnership for Eosinophilic Disorders at the WAEC 5K Run/Walk (9/29/12)
We are walking in the Washington Area Eosinophilic Connection 5K on September 29 to support research for Eosinophilic (ee-oh-sin-oh-fill-ick) Gastrointestinal Disorders (EGID). Our 11 y.o. daughter Ella has a lifelong conditoin called EoE (Eosinophilic Esophagitis) which is currently controlled through daily medication. Some kids and adults with EoE need to use a feeding tube and are allergic to most foods. These disorders have only been known in the recent past and are often undetected/misdiagnosed, but are growing in prevalence (estimated prevalence for EoE alone is 1 out of 2000 people) and research is in it's infancy. There has been a 2- to 10-fold increase in new cases in the past 10 years. EoE causes inflammation and damage to the esophagus, and sometimes small intestine, and can cause nausea, pain, and difficultly swallowing/food impaction. Currently the only way to diagnose and monitor these disorders is through repeated endoscopies, which are expensive and invasive, and many families must purchase highly expensive formula as the sole food source, not coved by insurance. So any inroads we can make to the understanding of these conditions and less invasive ways to monitor them, as well as new treatment options, have the potential to dramatically improve the quality of life for people with EGID. Anything you contribute will help make a brighter future for many people with EGID as well as their families. Thank you!
APFED, a 501(c)3 organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness and fund research while promoting advocacy among its member.
All Proceeds will support APFED's Hope on the Horizon Research Fund, which provides grants to investigators to pursue unique research ideas that could lead to less invasive diagnostic measures and more effective treatments for those suffering from eosinophil associated diseases.
APFED is a 501(c)(3) tax-exempt organization soliciting tax deductible private contributions.
APFED is audited annually by an independent public accounting firm. Financial statements are available upon request by writing to P.O. Box 29545, Atlanta, GA 30359, by calling 713-493-7749.
Virginia Residents: Financial statements for the last fiscal year are available from the State Office of Consumer Affairs, P.O. Box 1163, Richmond, VA 23218.