Gavin's Hope

A team for PEDIATRIC NEUROTRANSMITTER DISEASE ASSOCIATION INC

  • $2,096
    Raised
  • 24
    Donors
  • 1
    Fundraiser

This campaign already ended. We hope you like the results!

$2,096 raised of $10,000

"Gavin's Hope" a team to help the PEDIATRIC NEUROTRANSMITTER DISEASE ASSOCIATION INC...

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Lisa Simonds

Gavin's Hope

$2,096 24

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  • Rita B Hogge: I Pray that one day that a cure will be found to help all the children who...
    about Gavin's Hope
  • Kelly m Bryant: We are posting the information on our Facebook pages. Couldn't think of a...
    about Gavin's Hope

Hi Everyone,

My name is Gavin and I am 2 ½ years old. I was diagnosed with AADC in April of 2011. AADC deficiency is a very rare disorder, only about 50 to 100 people with this condition have been identified worldwide. AADC is a genetically inherited neurological disorder affecting the brains ability to produce neurotransmitters, dopamine and serotonin; two of the most essential neurotransmitters needed for every day living!

I take thirteen (13) doses of adult Parkinson’s medications daily. This has allowed me to begin sitting up and crawling. I am still unable to stand, walk, eat or talk on my own. I have a G-tube which I feed from and it nourishes my body.

I am such a lovely little boy. I like to jump up and down while my mom is holding me and open every door in the house.

100% of your generous contributions will go directly to researching this disabling condition.

Our hope is possible...to find a treatment strategy that drastically improves AADC function and thus improve the quality of life of an AADC affected child.

Our dream is simple…to cure AADC Deficiency.

THANKS SO MUCH!!!!!!!!!!!!!!!!!!!!

Team Captain

Lisa Simonds Lisa Simonds