"Gavin's Hope" a team to help the PEDIATRIC NEUROTRANSMITTER DISEASE ASSOCIATION INC...
My name is Gavin and I am 2 ½ years old. I was diagnosed with AADC in April of 2011. AADC deficiency is a very rare disorder, only about 50 to 100 people with this condition have been identified worldwide. AADC is a genetically inherited neurological disorder affecting the brains ability to produce neurotransmitters, dopamine and serotonin; two of the most essential neurotransmitters needed for every day living!
I take thirteen (13) doses of adult Parkinson’s medications daily. This has allowed me to begin sitting up and crawling. I am still unable to stand, walk, eat or talk on my own. I have a G-tube which I feed from and it nourishes my body.
I am such a lovely little boy. I like to jump up and down while my mom is holding me and open every door in the house.
100% of your generous contributions will go directly to researching this disabling condition.
Our hope is possible...to find a treatment strategy that drastically improves AADC function and thus improve the quality of life of an AADC affected child.
Our dream is simple…to cure AADC Deficiency.
THANKS SO MUCH!!!!!!!!!!!!!!!!!!!!