A team for APFED
"EOS Warriors" a team to help the APFED raise awareness for Eosinophilic disorders.
Jamie Connors Zwirko
EOS Warriors for APFED
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Caelyn was diagnosed at age 2 with Eosinophilic Esophagitis, even though her symptoms started soon after her birth. Caelyn would vomit several times a day, sometimes forcefully, for no reason at all. Caelyn was always sick with croup and other illnesses when she was little, so her doctor always dismissed my concern for her vomiting as Caelyn "just being sick". Finally another doctor in the office agreed with me, stating she "vomits way too much". We were referred to a Gastroenteritis doctor and was diagnosed with EoE. As Caelyn got older she also started suffering from stomach pains, slow weight gain, choking and food getting stuck in her throat.
Now Caelyn is 7 years old. After 7 endoscopies, multiple symptoms, numerous food trials and being milk, soy, wheat, egg, oat, peanut, tree nut, fish and shell fish free Caelyn is in "remission". There is currently no cure for EoE and she can come out of remission at anytime as she discovers/ wants to try new foods.
I consider Caelyn to be lucky, due to the fact that we found all her allergic food "triggers". Unfortunately for some individuals, they have little or no safe foods and must survive off a very costly elemental formula and/or take daily steroids.
Please help us raise money to help find a cure for this terrible disorder.