A team for NF UPPER MIDWEST
"Buckley" a team to help the NEUROFIBROMATOSIS ASSOCIATION OF MINNESOTA aka NF INC. MINNESOTA...
Neurofibromatosis is an everyday word in our family. My son Blake was diagnosed with NF1 in September of 2009 at the age of 4. My husband, Greg was subsequently diagnosed with NF1. Although my husband was lucky and went 28 years with no problems, my son however wasn’t as lucky. He has an Optic Glioma on his left Optic nerve, along with lisch noduals. Although the Optic Glioma is stable he has to have regular MRI’s and eye exams to watch for problems that could arise. Blake has been in Speech Therapy since his diagnosis. He has learning difficulties along with his speech issues that is making school a struggle. Blake was recently diagnosed with leg bone problems, called Femoral anteversion with external tibial torsion. Which makes running, sitting & going up stairs much more difficult for him. Making it nearly impossible to keep up with his peers. The scariest part is NF1 is a progressive disorder. You have to take it day by day as any number of issues could appear at any point.
Please help support NF Inc. Minnesota in its work supporting those with NF and their loved ones. Every donation makes a difference. YOU MAKE THE DIFFERENCE! One day to have a cure for Neurofibromatosis!