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ECD Hope Angel

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2014 Patient and Family Gathering

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Fund Erdheim-Chester Disease research and patient support.

The ECD Global Alliance supports patients, and their loved ones, affected by Erdheim-Chester Disease, an extremely rare and debilitating disorder. Little is known about this disease, it can take years to receive a proper diagnosis and there are no scientifically proven treatments.

Please help the ECD community reach our goal of raising $241,000 before October 2015 to fund ECD research and provide patient support. If we all donate what we can, this is achievable. We thank you for doing what you can toward this goal that one of the ECD patients has challenged us all to meet.

Erdheim-Chester Disease can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, called histiocytes, accumulate in the loose connective tissue of the body. As a result this tissue becomes, dense, thickened and fibrotic. Multiple different organs can be affected. Unless successful treatment can be found, organ failure can result.

The organization is focused on providing support to all those affected by ECD, promoting research relative to ECD, raising awareness of ECD and sharing ECD educational material. For more information, please see

We thank you for your support.

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Organization Information

Fund Erdheim-Chester Disease research and patient support.

EIN: 270759192

Reports: Guidestar


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