Kevin Kirby

End of Summer Pool Party for a Cure CAN STILL DONATE !!!

Kevin Kirby 's fundraiser for FACIOSCAPULOHUMERAL SOCIETY

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Thank you for your generous support of the FSH Society. It literally means the world to me. Kevin Kirby

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Atlanta End of Summer 2011 Pool Party for Muscular Dystrophy.


-- You can still donate via this page and all funds go directly to the FSH Society for MD research grants --

Host Committee:

Robert Annas & Douglas Shaw, Frank Bragg & Michael McAllister, Chris Bowden, Ken Britt, Jennifer Brooks, State Rep. Pat & Jerry Gardner, Roman Greene, Michael Grover & Nunzio Lupo, John Kale & Michael Martin, Kevin Kirby, Tom & Becky Kirby, Karla Kreitner & Donna Grindle, Michael Lappin & John West, Maggie Lopez & Patt Cianciullo, Gregory Nevins, Joe Porter & Carter Elliott, Jeff Riley & Doug Sturgess, Laura Sawyer, Chuck Stephens & Daylon Lutzenberger, Jeff Swart & Mark Wade, Steve Tyrrell, Mike Wright & Bob Glascock, Mike Zenner & Ron Rodriguez

Saturday, September 24, 2011
4:00 – 7:00 PM

Monroe Place Apartment Club House & Pool
2000 Monroe Place, NE
Atlanta, GA 30324

I was diagnosed with Facioscapulahumeral Dystrophy (FSH or FSHD) ten years ago this summer. A genetic muscular dystrophy that initially affects the skeletal muscles of the face, scapula and upper arms -- FSHD has no cure and none medical treatments.

Founded by two research scientists with FSHD, the FSH Society ( harnesses the power and insight of a patient-driven model to not only support those with the disease and their families – but to educate, advocate and fund the research needed to ultimately find a cure.

One of the FSH Society's key missions is to provide support, knowledge and experience to help FSHD patients, families and caregivers improve their quality of life, lengthen their lives, regain a sense of control and avoid isolation. Although the physical losses continue with FSHD, thanks to the efforts of the FSH Society and countless patients, families, caregivers, medical professionals, researchers and volunteers, life for those with the disease is far better today than it was 40, 20, or even 10 years ago.

The FSH Society is a 501(c)(3) organization that has earned Charity Navigator’s third consecutive 4-star rating for its ability to efficiently manage and grow its finances. Only 13% of charities rated have received this highest rating.

For the Atlanta End of Summer Pool Party – all costs of the event (food, open bar, etc..) will be covered through sponsorships and volunteers so 100% of all donations will go directly to the work of the FSH Society and direct funding for researchers working on a cure for FSHD.

Thanks you!

Kevin Kirby

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Organization Information

450 Bedford Street
Lexington, MA 02420




Research leading to treatments is producing results. We need everyone's best work now--researchers and donors--to help reach our goal!

EIN: 521762747

Reports: Guidestar

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