Raising money to help the research of and others with RND.
Hi our names are Alaina and Emily Petruzzelli. We are sisters, both struggling with everyday life due to RND. Alaina has had it for about 11 miserable years now. Emily has had it for 4-5 unbearable years and was diagnosed about a year ago. It is truly one of the worst and most painful diseases out there. It can easily ruin your life, if not caught quick enough or treated correctly. There were times in our life where getting out of bed was extremely difficult, where walking was impossible, and everday life was a struggle. RND is a painful neurovascular disease that constricts the blood veins and reduces the supply of oxygen to the skin, muscles and bones. This lack of oxygen can cause acid to build up, causing new pain that is then sent back through the cycle to cause the neurovascular nerves to constrict the blood flow again. If untreated, the pain caused by RND can become so severe that it interferes with the patient's ability to move the affected body part. Both Alaina and I suffer with RND through out our whole bodies. Luckily for us, we now know what we have and we have amazing doctors helping us at Childrens Hospital. However there are still plenty of kids that have yet to be diagnosed and are struggling beyond belief. We know what it was like to go through not knowing what was going on with our bodies and we don't want other kids to go through it too. Any money you donate could help get the word out there, get kids diagnosed, and finally treated. By you donating money your changing a kids life forever.
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PO BOX 7762
WILMINGTON, DE 19803
The Childhood RND Educational Foundation, Inc, a 501(c)(3) non-profit organization dedicated to educating health professionals and families.
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