People like you have helped us to meet our goal of $5,000, please continue to help us reach for the stars! There is no limit in giving!!
Our son, Nicholas, was diagnosed with hemophilia at 4 1/2 months of age. With no family history, we learned that 33% of all cases are considered spontaneous mutation. Hemophilia is a rare bleeding disorder affecting approximately 20,000 individuals across the country. The 1980's brought a decimating disease in AIDS, infecting our son and killing 5,000 Americans with hemophilia, leaving another 5,000 fighting to survive both diseases, while also carrying the finanacial burden of expensive drugs. There are many young families, with newly diagnosed children, overwhelmed by the exorbinant cost of Factor, the medicine used to stop a bleeding episode. Because so few people have this bleeding disorder, medicine needed to stop a "bleed" comes with a high price tag. As this population ages, arthritis begins to form in their joints. Most bleeding episodes occur within the joint, which then leads to long-term damage. Joint replacements are very common among these individuals. As you can see, the financial costs are significant. I know these are hard economic times, if we could all give just $10-15 each, we can make a huge impact on the lives of these families and individuals. Please consider donating and supporting this wonderful cause. Our son works with these families, he sees first hand the struggles they go through. Help us, to help them! God bless you and thank you!!
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