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This fundraiser ends on

06/11/2012 at 11:59 PM ET

16


Transverse Myelitis is a rare neurological disorder that is part of a spectrum of neuroimmunologic diseases of the central nervous system.

My family has been devastated by this disease as my son, Daniel, a healthy 29 year old, was blindsided by an attack of Transverse Myelitis (TM) on 09/21/10. What began as a simple backache progressed – within 24 hrs - to total paralysis from roughly the mid-chest region to his toes. Daniel’s prognosis was not good. Roughly one-third of TM victims experience no recovery and live with permanent paralysis which usually includes loss of normal bladder and bowel function. Another one-third realize a partial recovery, the extent of which can only be determined after a period of two years, while the remaining one-third achieve as much as a 90% recovery.

Daniel is among the fortunate one-third who has had a significant recovery. He is by no means back to 100%, but four months after the onset of this disease he was able to walk reasonably well and seemed to be improving in many areas. It has been a year and he still experiences pain and numbness (yes- you can have both with TM), along with fatique and bladder issues but we are optimistic that he will eventually be able to resume a normal life. We are so thankful for Daniel's progress. Many never make any progress. Children as young as 4 months old and up to 80 years old have gotten this disorder. It can happen to anyone at any time. Please donate and help us raise enough money to find a cure.

Updates and Donor Comments

  1. Colleen SpaethColleen Spaeth 02/21/2012 at 01:15 AM ET
    Very happy to put you over your goal! I am a TM person as well, since May 2007! Good luck to Daniel in the future, he's got his age going for him! And a great mom as well!
  2. Darlene RobertsonDarlene Robertson 02/20/2012 at 04:35 PM ET
    We just need $10.00 to reach $100.00. :)
  3. Sharon BowmanSharon Bowman 01/02/2012 at 02:38 PM ET
    Hon, I hope you find out something wonderful about some kind of breakthrough about TM, and most of all I wish you less pain this next year. I worry for you and your mother.
  4. Darlene RobertsonDarlene Robertson 01/02/2012 at 09:58 AM ET
    My wish for 2012 is new progress for TM treatment and cure. AND less pain for all of the people suffering with TM.

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  • Summary

    Transverse Myelitis is a rare neurological disorder that is part of a spectrum of neuroimmunologic diseases of the central nervous system.
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