Empowering people with ALS and their families to live fuller lives by providing them with compassionate care and support.

Thank you to all of our generous donors for your support. Your contribution makes it possible to provide services and equipment to people with ALS so they can live fuller lives. Through care, advocacy, research, education and support, you are helping us to make a difference for people living with ALS.

Chapter founder and longtime supporter Kent Hrbek and his wife, Jeanie, became involved with ALS after the diagnosis of Kent’s father, Edward. Edward died of ALS in September, 1982, at the age of 53. Kent and Jeanie serve as honorary chairs of the Chapter and continue to support it financially and personally.

ALS (amyotrophic lateral sclerosis) is a degenerative disease of the central nervous system, characterized by the death of the motor neurons (specific nerve cells). ALS results in gradual, progressive weakness and wasting away of voluntary muscles, often leading to total paralysis. The life expectancy of a person living with ALS is usually two to five years from diagnosis.

  • Our Chapter serves 500 people with ALS throughout the state of Minnesota, North Dakota, parts of South Dakota and Superior, Wisconsin.
  • On average each week in Minnesota two people
    are diagnosed with ALS and two people succumb to the disease.
  • On average in North Dakota each month, one person is diagnosed with ALS and one person dies from the disease.
  • On average in South Dakota each month, one to two people are diagnosed with ALS and one to two people die from the disease.

Our services, offered at no charge to persons with ALS include:

  • Hrbek-Sing Communication & Assistive Device Program
  • Jack Norton Family Respite Care Program
  • Durable Medical Equipment Loan Pool
  • Support groups
  • Consultation and support
  • Volunteer program
  • Newsletter and lending library
  • Advocacy

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