Lisa Gurry fundraising for NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM
This is a fundraiser for the National Organization for Disorders of the Corpus Callosum.This great organization supports Taylor's condition.
As some of you know, I’m tackling my first marathon on November 4th in NYC. I’ve been a runner my entire life and I’ve always said that if I ever do a marathon, I’m going to raise awareness and money for a worthy cause along the way. As it turns out, we’ve developed a deep devotion to a wonderful organization over the last 5 years. We are seeking to raise $10,000 for the National Organization of Disorders of the Corpus Callosum (NODCC).
Taylor was diagnosed with Agenesis of the Corpus Callosum (ACC) at eight months. You can see a video of her journey by clicking on the third image above or visiting http://thegurrys.wordpress.com.
The corpus callosum contains hundreds of thousands of neural pathways and connects the right and left hemispheres of the brain. Agenesis simply means - absence. Taylor was born without this critical part of the brain - and so are thousands of other children each year.
There is no medical cure for ACC and effects can range from minimal to severe. Therapy can make a remarkable difference in these children's lives - making it possible for them to walk, speak, eat normally, and live productive and independent lives.
We have been blessed that Taylor has been tremendously lucky. Our medial insurance has covered all of her medical appointments, equipment and extensive therapies. After more than 5,000 hours of therapy in her short five years, she is making great progress.
Most kids aren't this lucky. The NODCC is a remarkable resource for all families who receive the groundbreaking news of a diagnosis. When you are told this news, your world is rocked and you don't know where to turn. Many doctors and therapists haven't heard of this condition. Most families have never heard of the corpus callosum - we certainly hadn't.
The NODCC provides education, support and networking opportunities for families, doctors, and therapists around the world to help people affected by ACC. Through materials shared with families, online resources, and regular conferences, the NODCC serves as a valuable lifeline to these children and their families.
Our goal is to raise $10,000 for the NODCC - this organization is minimally funded and this amount will go a long way in helping the NODCC with its mission.
We have seen the difference support and education can make in Taylor's life and would like to give back to other children and their families. Thank you for considering supporting this fabulous organization.