On Sunday, January 20, 2013, I will be running the Bermuda Marathon to raise money to support research to find a cure for Rett Syndrome.

What is Rett Syndrome?

  • Debilitating neurological (movement) disorder that predominantly affects females.
  • Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old.
  • Caused by a single gene mutation that leads to underproduction of an important brain protein.
  • The most severe form of autism.
  • The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
  • Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
  • As prevalent as Cystic Fibrosis, ALS and Huntington's.
  • Another little girl is born with Rett Syndrome every 90 minutes.
  • Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.

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Organization Information

  • Name

  • Phone

    904-875-4810
  • Address

    2891 BREAKERS CT
    AMELIA ISLAND, FL 32034
  • EIN

    208011668

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