Jamie Van Pelt

Running for my sister who has Cystic Fibrosis.

What it is:

Cystic Fibrosis is a life-threatening disease that causes the body to produce thick, sticky mucus that clogs the lungs and obstructs the pancreas. The result is that many times people with CF cannot digest their own food and often get life-threatening lung infections.

People with CF have salty skin, phlegm-producing persistent coughing, frequent lung infections, wheezing and shortness of breath, poor growth and weight gain, and bowel issues. One thousand people, often under the age of two, are diagnosed with this disease each year. The average life expectancy for people with CF is mid to late 30s.

However, thanks to research funded by the Cystic Fibrosis Foundation, many exciting advances have been made toward finding a cure for this awful disease. Now more then ever real hope for not just a control, but a possible cure for the underlying cause of CF is on the horizon. It is so important to keep this research moving forward!

This March, I am running with Team 65Roses to help raise money to keep that research moving toward a cure that will ultimately save my sister's life and the lives of the almost 30,000 people world-wide who suffer from this disease.

Our Story:

When my little sister was born, not too many people really knew what Cystic Fibrosis was or how to treat it. In fact, the doctors who diagnosed my sister told my mother that my sister probably would not see adulthood. She would die before she was able to drive a car or go on a date. Could you imagine holding your sweet, beautiful new baby and being told that she wouldn't "grow up"?

My sister is now 24 years old. She lives every day breathing a little harder than the rest of us. She has had to live with days filled with pills and treatments that help her body fight off the symptoms of the disease that threatens her life. She has to put her life on hold every now and then to go spend time in the hospital to "tune up" her lungs so they function better.

If you know my sister, this is just a small detail of her life. That girl is amazing! She never once has complained about having Cystic Fibrosis. In fact, she has done more with her life than many people ever do. The most impressive of all is that she has run the same race that I am training for.

I am running because I want to be by her side. Because that is where I belong. My sister is my best friend and my inspiration. If she can run this race with Cystic Fibrosis, I can run it for her and for every other family that has to deal with this terrible disease.

Please help me raise money to help find a cure for Cystic Fibrosis. I want my sister to live way past her 30s, and I don't want any other mother to have to hold her child and think that her child has been given a death sentence. It shouldn't be that way, and with the help of the Cystic Fibrosis Foundation, one day it will not.

Thank you for your sponsorship.

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Organization Information

Miles for Cystic Fibrosis's NEW Razoo page can be found at http://www.razoo.com/story/Miles-For-Cystic-Fibrosis-Org

EIN 582398902

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