I am running the Disney Princess Half Marathon in Feb 2013 with the GP2C team to raise $ for Rett Syndrome Research. Support Princess Chloe!
Chloe was diagnosed with Rett Syndrome when she was 18 months old. She never gained the ability to sit by herself or crawl or walk. Around the age of 1 she stopped speaking the few words she had developed. When she was 3 she lost the ability to feed herself and use her hands purposefully. Those are the things she can't do. What she can do is speak volumes with her eyes, she is the best snuggler in the world and her giggle is infectious! She has so many friends, therapists and teachers who worked tirelessly to help her. She captures the heart of everyone who gets to know her.
It is because of Chloe that I started running 7 years ago. She would be up early so we would head out for an early morning walk. Before I knew it we were running a quarter of the way and then half. Very soon we were running the whole thing. In 2010, I ran my first half marathon. It was a challenge I took on for myself. Since then I have completed 5 half marathons. Last year at the Disney Princess Half Marathon Expo I was stopped in my tracks as I saw a booth with a large banner that said "Cure Rett Syndrome". I was moved to tears. After speaking with the founder of Girl Power 2 Cure, I knew that in the fututre I would be running for Chloe and not for myself I would run to raise money for research for Rett Syndrome.
Please support Princess Chloe with a donation in her honor as the GP2C team seeks to raise money to end this horribly debilitating disorder.
Thank you for reading our story!