I am running the Disney 1/2 Marathon to help my daughter, Quinn win her fight against Rett Syndrome!
Our little princess, Quinn, was diagnosed with Rett Syndrome in May 2006. She has a dynamic personality and an amazing drive to learn new things each and every day. Her smile lights up everyone’s eyes and her giggle fills the room with laughter. We marvel in her quiet charm and delight in each of her accomplishments.
Quinn struggles continuously to find alternate ways around the challenging and debilitating symptoms of Rett Syndrome. She has diminished motor skills, limited use of her hands, and as with many of our girls has most recently started having seizures. Quinn does walk independently and enjoys being around her "friends and family". Rett Syndrome has taken away many things from our little girl like talking, feeding herself, and independence but it has not taken away her loving spirit and infectious giggle.
Despite the fact that RS has taken away her ability to communicate verbally, Quinn is very social. Her signature greeting includes batting her beautiful blue eyes and big smile while coming in for a closed arm hug and an open mouth kiss.
Quinn is in the 4th Grade. She loves school, learning, and spending time with her friends. Any mention of the bus brings excitement and delight to her face. She is a very busy girl both at school and at home. Her favorite activities include swimming, watching her favorite videos, listening to music and going "out to eat".
Quinn adores her 2 brothers, Ryker and Spencer. They love to act up for her and act "silly". She laughs hysterically whenever they get into trouble: A true sister.
In February I am running in my 2nd Princess 1/2 Marathon at Walt Disney World's Resort with Girl Power 2 Cure, raising funds for Rett Syndrome Research. This team was created and is run by one of our Rett moms and is composed of lots of runners committed to fighting Rett Syndrome. In support of this endeavor, I am once again asking for your support.
Science right now is exciting, the research is moving fast and offers real hope for our girls. But unfortunately is almost all privately funded and so it is up to us, the parents and friends of Rett Syndrome to support and further the research.
Any donation is welcome and very much appreciated.
Our hope is that someday every family will live in a world without Rett Syndrome.
Let’s all work together to help make that happen!
To learn more about Rett Syndrome visit http://www.girlpower2cure.org/who-we-are/rett-syndrome.aspx
Thank you for visiting and Many Blessings to you
Cliff, Niki, Quinn, Ryker & Spencer Tebbe
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!