Shannon's Miles of Smiles for Rett
To raise money to help find a cure for Rett Syndrome.
Imagine the symptons of autism, cerebral palsy, Parkinson's, epilepsy and anxiety disorders...all wrapped up in one little girl. This is Rett Syndrome.
Hi! My name is Shannon Nealon and I'm running to raise money and awareness for Rett Syndrome. My older sister Brianna has Rett, and I'm running races on her behalf. Rett Syndrome has taken away Brianna's ability to walk, talk and needs constant assistance in all aspects of her life. The scientists are so close to a cure and every little bit helps. Please donate to help raise money for this cause so one day Brianna can run with me.
Next Races:
Malverne 5K - October 14, 2012 - COMPLETED :)
Northport Veteran's 4k Cross Country Race - November 3, 2012 - COMPLETED :)
Lynbrook Fly With The Owls 4-Mile Run - November 17, 2012 - COMPLETED :)
Oyster Bay 5k Turkey Trot - November 22, 2012 - COMPLETED :)
Disney Princess 5k - February 23, 2013 - COMPLETED :)
To learn more about Rett Syndrome and Girl Power to Cure, visit the following links.
www.rsrt.org
http://www.girlpower2cure.org
Shannon Nealon fundraising for GIRL POWER 2 CURE INC
| NPO |
GIRL POWER 2 CURE INC |
| Address |
2891 BREAKERS CT |
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|
AMELIA ISLAND, FL 32034 |
| EIN |
208011668 |
Girl Power 2 Cure raises awareness & funds for research for Rett Syndrome, a devastating neurological disorder that primarily affects girls.
We are committed to making Rett Syndrome the first reversible neurological disorder by harnessing the spirit of girls to support fellow girls who are suffering. We support girls in the planning and implementation of events that raise awareness and funds for Rett Syndrome research, as well as support Rett families with resources, fundraising help and awareness tools.
Our inspiration is our flower: always in bloom with hope and positive energy, ready to grow anywhere there is someone ready to join in our mission.
- We believe Rett Syndrome can be the first reversible neurological disorder.
- We believe that girls are powerful and positive community leaders and mentors.
- We believe in empowering Rett Syndrome families by supporting and encouraging their creative fundraising and awareness initiatives.
- We believe amidst the mass confusion going on within their central nervous systems, Rett Girls are smart, strong and waiting bravely for us to unlock the door to their recovery.
- We believe that finding a successful treatment for Rett Syndrome will pave the way to treatments of other neurological disorders such as: Autism, Alzheimer's, bipolar disorder and more.
Shannon Nealon
Thank You to everyone for all your support !!!!
22:34 PM ET
Geraldine Wojno
Congratulations Shannon on surpassing your goal. Brianna is blessed to have such wonderful sisters.
00:48 AM ET
Michelle Sarcone
Good Luck, Shannon! Michelle S.
09:54 AM ET
Mary Donnelly
Dear Shannon.....you are terrific! Love to you and your family, the Donnelly's are cheering too :)
10:49 AM ET
Annmarie Kiernan
Shannon.I am friends with you Aunt Bernadette.You are the BEST little sister anyone could ask for.Keep up the good work.
12:53 PM ET
John M Griffin
Shannon we are so proud of your efforts on behalf of your sister Brianna.
20:24 PM ET
Kristan M. Duffy
Go Shannon!! The Duffys are cheering for you!
21:00 PM ET
Stephanie E Oven
Congratulations Shannon on completing the 5K.....awesome job! You really showed so much love for Brianna.....don't ever stop showing it! Wish you all the best with your fundraiser ! Love Steph & Bob
22:56 PM ET
Jeannette Molina
Go Shannon! Hope the Malverne race was a breeze!
15:49 PM ET
Kathleen M. Nealon
Go Shannon Go!!! Love, Mairead & Caity
21:06 PM ET
Virginia A Nealon
Go Shannon!
19:51 PM ET
Kelin Calabria
Best of luck Kathy and family! Love to all! Kelin
14:50 PM ET
Bernadette Pender
We wish you all the best in your endeavor.... Michelle, Erin and Bernadette Pender
20:01 PM ET
Timothy Healy
Take part!
16:32 PM ET
Suzanne Perino
Hey Shannon....Good luck!
11:52 AM ET
Margaret M.Carroll
We are so proud of you Shannon. Finish Strong!
10:25 AM ET
Thomas P Carroll
Uncle T & Aunt B
20:11 PM ET
Ariana Baldwin
Hey Shay it's me Ariana from school and you are doing an AMAZING thing and i am so proud of you and you are a great person give Brianna a big hug for me
20:07 PM ET
Tom J Eyerman
Shannon, You are an angel, but no "ordinary" angel ; you are our "Special Angel" !!
16:08 PM ET
Amanda Cartwright
Good Luck with your run...take it easy!
16:00 PM ET
Jennifer A MUller
You are one special young lady - you go girl! Love, Mrs. Muller
11:54 AM ET
Christine Meehan
Good Luck on your run! Love The Meehans
07:28 AM ET
Casie J Faello
Good Luck on your run Shannon!!!!!! This is such a great thing that you are doing for your sister. Much Love The Faello's
21:30 PM ET
Frances F Federoff
I am a friend of Mrs. Baldwin - I think you are terrific! Good luck!
20:44 PM ET
Jonathan Baldwin
Jonathan = Mr. & Mrs. Baldwin, Ariana, Chris and Nic
19:24 PM ET
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