Medical research for Pulmonary Fibrosis; patient information and advocacy

I was diagnosed with Idiopathic Pulmonary Fibrosis in 2004. Searching on-line for patient-friendly data, I discovered the best resource was The Coalition for Pulmonary Fibrosis. I have volunteered as a Patient-Advocate with the CPF in Washington DC, lobbying for research support and regulatory reform. In 2009, I joined the CPF's Board of Directors. PF kills more than 40,000 Americans every year yet there is no known cause, treatment or cure. The Coalition for Pulmonary Fibrosis offers a dynamic lifeline to patients; an information resource to physicians; and it provides funding for Pf research.