M-CM Network works to improve the lives of individuals with macrocephaly-capillary malformation, a rare genetic syndrome.
Macrocephaly-capillary malformation (M-CM) syndrome is a rare, sporadic genetic condition. M-CM patients have many characteristics in common, but the degree to which they are affected varies widely. An accurate diagnosis is sometimes difficult to establish as many medical providers are unfamiliar with this syndrome.
The M-CM Network provides comprehensive medical information about M-CM to help patients and care providers make informed care decisions. We aspire to establish a disease registry to collect data about affected individuals so that we can greatly expand what is known about this syndrome. Your generous donation is essential to helping us meet this goal.