Kudos for Kit is the fall NODCC fundraiser designed to support the mission of enhancing the lives of those diagnosed with a DCC.
Our beautiful daughter, Kit, was diagnosed at birth with Complete Agenisis of the Corpus Callosum. At that time the information about the disorder was limited and frightening. Throughout the years, Kit has participated in activities that create the development of neurological connections between the hemispheres of her brain.
Her willingness and attitude to help grow the organization is proof of the benefit for being involved and it has grown to be an important part of her life. As a family, NODCC has helped us to meet the challenges of having a child with ACC.
By participating in the conferences, family gatherings and receiving newsletters we have been able to stay connected friends that are members of our community. Being a part of the NODCC has afforded us the opportunity of sharing the challenges with others as well as the chance to celebrate the successes of our kids.
By becoming involved in the NODCC, Kit has been able to sharpen her self-advocacy skills and offer support to others. She has gained life long friends and participates in the sessions designed for the young adults. Often, she can be seen volunteering during the conference and having fun with her friends. She is able to give support, perspective and information to those families that have a new diagnosis or will answer a parent's question or two. She enjoys sharing with others how she manages in school.
We are very proud of our dear daughter and support her in the effort to help others by asking you for a donation. Your donation goes to our programs for the families of the newly diagnosed and to the family partnership program, and young adult program. Donations help to cover mailings and web support for the NODCC community.
When we left the hospital with Kit, in 1992, we were stunned by the diagnosis. We did not fully grasp the issues that would be part of the journey we would take. We only had each other, our friends and family to lean on. There were some dark days as we looked into the future and wondered about the challenge that lie ahead for us. Our path would have been made easier if we had an organization that we could depend on for support and information.
Please help to keep our NODCC light shining for our families and for kids like Kit, your support means her efforts to succeed have meaning and value. With the support you provide, she can continue to share her stregnths and give a promise of hope to someone who may need a little light.
Amanda and Mike Heyser