Huntington's Disease Society of America, Inc.

Mission

The Huntington's Disease Society of America (HDSA) is a national non-profit voluntary health agency that is dedicated to finding a cure for HD while providing vital services to those affected by HD. HDSA educates the public and healthcare profesionals about Huntington's Disease. HDSA funds both clinical and basic research while providing support and guidance for HD families through our national network of volunteer based chapters, as well as through our 21 HDSA Centers of Excellence - multi-disciplinary medical facilities with expertise in treating HD.

Programs

HDSA funds research through the following programs: Research Grants and Fellowships program, HDSA Coalition for the Cure, CHDI and the Huntington Project. HDSA also funds 21 HDSA Centers of Excellence for Family Services which provide a comprehensive network of medical and social services to those afected by HD and their families. HDSA Centers of Excellence also serve as a resource for allied healthcare professionals within each region. The society provides family services though HDSA Centers of excellence, the Society's 32 volunteer-based chapters, help-line (800-345-HDSA) and referral network, family information packets, social workers, Internet information services and a national convention. HDSA offers education to the public; our HD families and health care professionals through books, guides and pamphlets that address all HD related topics. In addition, HDSA newsletters - The Market, Toward a Cure, and Caregivers Link - provide news and information to the HD community and the national Web site (www.hdsa.org) offers 24-hour a day access to information and referrals around the country.