Bring Hope, Support, and quality of life to children and their families facing Congenital Heart Defects!
Ellianna Grace Foundation provides financial, logistical and emotional support to families facing a complex Congenital Heart Defect (CHD) who choose to travel for a Fetal Cardiac Intervention and follow up care to treat this defect.
What have we done?
Since established in June of 2008, we have awarded 28 grants, a total of $27,000, directly to families in need. For some families, these grants offset the overall financial commitment families make by providing meals, airfare and/or lodging. For others, our grants provided the extra support to allow them to travel for the fetal intervention when days prior they saw too many financial barriers to overcome.
We awarded a $7000 grant to Yawkey Family Inn which is a housing facility near Children's Hospital Boston, where the fetal cardiac intervention is being preformed. This is a much needed supportive housing facility that provides a "home away from home" for families while their child is at the hospital.
In addition, we have facilitated parent-to-parent connections for 31 families. These connections have proven to be one of the most requested, valuable and helpful resources Ellianna Grace Foundation has to offer to families.
Where are we going?
Bringing more awareness and expanding our reach!
We aim to increase awareness of Ellianna Grace Foundation’s resources among the pediatric cardiology community. These dedicated doctors diagnose, counsel and refer babies to the fetal cardiac intervention program in Boston. Giving them information about our resources will expand our reach to help more families. We are grateful to have the opportunity to reach cardiologists in a recently published article about
Ellianna Grace Foundation on Congenital Cardiology Today.
Why are we doing this?
Congenital Heart Defects (CHDs) are the most common birth defect and their cause is unknown. They occur in approximately one of every 125 births according to the March of Dimes. They are the leading cause of all infant deaths in the U.S.
The fetal cardiac intervention is pro-active. Traditionally, treatment for your baby’s heart defect could not be initiated until a baby was born. Now, we can treat a baby’s heart while he/she is still developing in the womb, lessening or stopping the progression of the most severe defects. It is hopeful.
When your baby is diagnosed with a Congenital Heart Defect and will require surgery it is devastating. But with hope, a person can cope with insurmountable challenges when you have hope. It is a long haul. Caring for a child with a serious CHD is a marathon. It requires a community of support. EGF is here to provide that community to families.
Thank you for learning more about the Ellianna Grace Foundation. Your support and generosity allow our work to continue.
Brita Dietzel and Jessica Lindberg
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