Welcome to Razoo!     Haven't registered yet? Facebook or Google Close

ECD GLOBAL ALLIANCE INC

  • 83
    Donors
  • 0
    Fundraisers

Support Erdheim-Chester Disease research and patient support. Thank YOU!

  •  

The ECD Global Alliance supports patients, and their loved ones, affected by Erdheim-Chester Disease, an extremely rare and debilitating disorder. Little is known about this disease, it can take years to receive a proper diagnosis and there are no scientifically proven treatments.

Erdheim-Chester Disease can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, called histiocytes, accumulate in the loose connnective tissue of the body. As a result this tissue becomes, dense, thickened and fibrotic. Multiple different organs can be affected. Unless successful treatment can be found, organ failure can result.

The organization is focused on providing support to all those affected by ECD, promoting research relative to ECD, raising awareness of ECD and sharing ECD educational material. For more information, please see www.erdheim-chester.org.

We thank you for your support.

Updates and Donor Comments

‹ Newer ‹ Newer 1 - 5 of 13 Older › Older ›
  1. Kevin J PattisonKevin J Pattison 04/18/2012 at 12:44 AM ET
    In memory of Tanya whose strength and faith has been an encouragement and blessing to us all
  2. sarah-jane martorellasarah-jane martorella 04/11/2012 at 11:26 PM ET
    In memory of Tanya. If only a little of Tanya's strength, serenity and true goodness can be a part of us all, the world would be a better place. I will always remember Tanya's smile and laughter.
  3. Christine ValladaresChristine Valladares 04/11/2012 at 08:58 AM ET
    In the hope that no-one will have to be as brave as the Balnaves family have been
  4. C BalnavesC Balnaves 04/03/2012 at 05:52 PM ET
    A small donation in Memory of Tanya from three of her friends. It is wonderful that an international effort can start to arrange some research where one country cannot support it alone. Thank you.Charles.
  5. E. KARNIKOLOPOULOSE. KARNIKOLOPOULOS 03/31/2012 at 10:58 PM ET
    This donation is made in memory of our lovely ikebana friend, Tanya. May she rest in peace. EMILY KARANIKOLOPOULOS
  6. MRS RUTH PARSONSMRS RUTH PARSONS 03/27/2012 at 10:38 PM ET
    We just lost our friend Tanya to ECD. Her husband told us about this website. Thank you for setting it up and allowing the world to contribute towards research into ECD. We hope that one day there will be a cure for this disease. Rest in peace Tanya, we will always miss you :(
  7. Walter ComerWalter Comer 12/31/2011 at 05:05 PM ET
    A great bunch of warm, supportive folks.
  8. Jeanette A EganJeanette A Egan 12/26/2011 at 12:56 PM ET
    Our hearts and prayers are with Lance and Ruth Ann in their journey with ECD. Thank you for your courage and love for each other. Jeanette
  9. Jacqueline J EberleJacqueline J Eberle 12/21/2011 at 05:05 AM ET
    It's amazing the amount of interest in and esearch on Erdheim-Chester Disease has come about in a very short time, because a few determined people believed in this cause!
  10. Janis BanJanis Ban 11/29/2011 at 07:25 PM ET
    Good work Kathy and everyone. so thankful that you are there for all of us.
  11. Janet L AlgeoJanet L Algeo 09/04/2011 at 02:55 PM ET
    I want to help if I can.
  12. Ann MarchettiAnn Marchetti 07/24/2011 at 04:58 AM ET
    Ann Marchetti - early diagnosis is required. I'd never heard of ECD until my niece became ill
  13. mark mcelweemark mcelwee 10/19/2010 at 12:17 PM ET
    Let's put ECD in its place!

Organization Information

  • Summary

    Support Erdheim-Chester Disease research and patient support. Thank YOU!

  • Reports

Make a Donation

Choose a suggested amount below, or give whatever you want.

  9. min $10

More Ways You Can Help

Help support ECD GLOBAL ALLIANCE INC by spreading the word or by creating a fundraiser.

Share Fundraise


12 Fans

See all fans


About Razoo



All donations are received and receipted by Razoo Foundation, a registered 501(c)(3) charity that operates a donor advised fund to fulfill donor advisements.

Giving Days on Razoo

We’re the industry leader in giving days, bringing in more donors and more donations than any other system.

Learn More


Contact Razoo

  1. 1020 19th St. NW #800
  2. Washington, DC
  3. 20036
Telephone
(866) 437-1952
Support from 9am to 6pm ET (M–F)
Email

Fundraisers

Create a fundraising page in less than 2 minutes

create a page

Nonprofits

Engage with our network of donors and fundraisers

get started
Visa, Mastercard, American Express, US Bank, BBB, Verisign
© 2012 Razoo
Follow us on