Colin Penuel

Colin Vs CF 2013 Atlanta

Colin Penuel's fundraiser for MILES FOR CYSTIC FIBROSIS

fundraiser
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Reaching the finish line of the 2012 Atlanta Marathon Relay

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Just Another Day

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This is a picc line. It is a more permanent type of IV. This is just a normal part of life when you have CF

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Breathing treatments

My name is Colin Penuel. I am 24 years old and I am currently a senior at Georgia Tech and will be graduating in May. I will be running the Publix Georgia Half Marathon on March 17th as a part of Team 65 Roses to raise money and awareness for Cystic Fibrosis research.

Cystic Fibrosis is a fatal genetic disease which primarily effects the lungs and digestive system. There is currently no cure for CF. Despite the fact that Cystic Fibrosis is the number one genetic killer of children and young adults in the U.S., the government does not provide funding for CF research! Instead, the Cystic Fibrosis Foundation, a non-profit organization operating off of donations, is the primary source of funding. When the Cystic Fibrosis Foundation was founded in 1955, the average person born with CF did not live long enough to attend elementary school. Since that time medical advancements have extended that average life expectancy to the mid-30's! All donations made on this page are split 50/50 between the Cystic Fibrosis Foundation and the Cystic Fibrosis-Reaching Out Foundation, which provides financial assistance to families who cannot afford the costs of their medications. All donations are 100% tax deductible and 100% of donations go towards helping people with Cystic Fibrosis!

I was diagnosed with CF when I was two years old. As a kid I was active in sports, playing baseball in an organized league and pick-up football games with friends just for the fun of it. I started running casually when I was 16, and started running seriously in summer 2010. My daily medical routine includes around three hours of breathing treaments and over 20 pills every day when I'm HEALTHY!! Living with CF is not easy and I would not wish this disease on anyone, but neither would I trade lives with anyone. I LOVE my life and without CF I wouldn't know the strength I have been given. If I never had CF, I think I would probably take a lot of things for granted and I might be blind to all my blessings.

I know what it's like to experience a mid-life crisis as a teenager when you think "I wasn't supposed to make it this far, now what am I supposed to do?" I know what it's like to be hospitalized for weeks at a time. I know what it's like to have your faith shaken and feel like there's no hope. I also know what it's like to make your peace with God and realize that every day is such a blessing! For my fellow CFers, if you're having a hard time fitting in or if you're having self-esteem issues, you're still cool to me! For my cysters and fibros who are struggling or having a hard time: Stay Positive! We go through a lot, but no matter how bad it gets, always remember that it's okay to SMILE!

In addition to helping raise money and awareness for CF research, I am also running to hopefully: 1) inspire other CFers to lead active lifestyles and exercise, it really helps! and 2) to show people that you are stronger than you think you are and with Faith and positivity you can do anything!

If you are unable to make a monetary donation, all forms of contribution (warm thoughts, prayers, kind words, positive energy, etc.) are welcome and greatly appreciated. Thank you so much to everyone who contributes to the cause of helping make CF stand for Cure Found!

In case you don't have CF and don't know what it's like to live with it everyday, I think this video does a pretty good job of illustrating what it's like: http://www.youtube.com/watch?v=Twjg7v-pTO4

For more information about Cystic Fibrosis, visit: http://www.cff.org/


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Organization Information

MILES FOR CYSTIC FIBROSIS
P.O. Box 2984
Tucker, GA 30085

Phone
6789386054

Web
http://www.milesforcf.org

Email
susan.miles4cf@gmail.com

Mission
Our team of marathon, half marathon,10K, and 5K runners, ROSEBUDS kids and Miles Everywhere folks raise donations to fight Cystic Fibrosis.

EIN 264020016

Reports Guidestar

$1,911 raised of $5,000 goal
$0 $5,000
($1,015 online, $896 offline)
20 DONORS

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