We are running in the Disney princess half marathon to raise awareness and much needed donations for research to help CURE Rett Syndrome!

After signing up for the Disney marathon and researching about Rett Syndrome we learned a lot as we were unaware of how many little girls this disease effects.

We came across a little girl named Brooklyn who is 7 years old and fights a battle of Rett Syndrome on a daily basis.

Rett syndrome is a disorder of the nervous system that leads to developmental reversals, especially in the areas of expressive language and hand use.It affects a newborn every 90 minutes and is most common in little girls.The cruelty of this affliction is that your newborn appears to be completely normal, developing the ability to sit up, crawl, finger feed, walk, and even begin to talk. By the age of 2 usually most or even all of their abilities are lost.

We are asking you to donate to help Brooklyn and so many other little girls who are suffering every day from this horrible disorder. Currently, the only ways we can help these girls is by managing their symptoms with drugs and therapies. However, studies have shown that Rett Syndrome can be reversible!

So please help us by donating anything you can to support research efforts to find a cure for Rett Syndrome !

Thanks so much!

Christy & Liz
Xoxoxo

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Organization Information

  • Name

  • Phone

    904-875-4810
  • Address

    2891 BREAKERS CT
    AMELIA ISLAND, FL 32034
  • EIN

    208011668

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