In December 2002, our family was blessed with a sweet baby girl, our fourth child that we named Abigail. Abby was very delayed in meeting her milestones, which we attributed mostly to Abby being blind in one eye. In late 2003, Abby began having seizures, and an MRI revealed that she had a birth defect in her brain known as Agenesis of the Corpus Callosum. The corpus callosum is the large bundle of fibers that connect the left and right hemispheres of the brain. This is basically the "superhighway" that moves information. In Abby's case, this has caused learning delays and some social anxiety.
Callosal disorders are rare, so after Abby's diagnosis, finding reliable information was difficult. Even most medical professional admitted to not understanding this condition. But we finally found the National Organization for Disorders of the Corpus Callosum (NODCC) which has been an enormous blessing. The NODCC has provided us with tons of information, great literature to share with Abby's teachers and caregivers, and connections with other families. There is a national conference held every 2 years which includes research updates, classes on relevant issues, and the opportunity to meet with others whose lives are affected by this disorder. The NODCC also helps support much needed research.
We believe in the work the NODCC is doing. The information they have provided to us has been invaluable as we try to help Abby acheive her best. Please consider helping us support this wonderful organization so they can continue in their work.