In 2004, when Sydney & Delaini were diagnosed with AADC there were only 24 other cases of this disorder in the WORLD! At that time no children had passed away from complications of AADC.

Today there are 70 cases in the world and this physically impairing disorder has claimed the lives of approximately 10 of our children. We need your help now.

The majority of our research is funded from monies that we collect from people just like you. Every dollar makes a difference and your thoughtful donation is so appreciated. Please take a moment to donate and help give these kids a chance.

To help you understand more about our cause and why your help is so important to us… AADC Deficiency is a rare genetically inherited brain disease. This means the brain lacks the ability to complete signals which instruct the body to move and function, for even the simplest of tasks. Children with AADC Deficiency suffer profound and life threatening disabilities. With your help we will fund AADC Research to try and improve the current available treatment strategies or better still…develop a cure. AADC Deficiency Research is vital to the survival of children living with this disease.

Visit: www.aadcresearch.org or www.pndassoc.org to learn more about this devastating disorder

Thank you for your kindness,

Nancy,

Mom to Sydney & Delaini 6 yrs old