Online donations to our annual fundraiser is used to advance OMS research!!!.
Opsoclonus Myoclonus Syndrome (OMS) is a rare disease afflicting young children. OMS often begins as a neuroblastoma (a type of pediatric cancer). As the body battles the cancer, the immune system becomes overactive and begins attacking the brain, causing dibilitating effects on the child. Left undiagnosed and untreated, the child will require dependant care for their life. OMS researchers are working to find the cause and consistent treatment protocol for these children.
The board of directors of The OMSlife Foundation has elected to direct the monetary proceeds collected from our Fourth Annual OMS Teddy Bear Drive to the following recipients:
Dr. Michael Pranzatelli, The National Pediatric Myoclonus Center, Springfield, Illinois. Dr. Pranzatelli has been instrumental in progressing research in OMS for over 20 years. Through his research, he has helped hundreds of children around the world enjoy a higher quality of life.
Dr. Mark Gorman, Boston Children’s Hospital, Boston, Massachusetts. Dr. Gorman, through collaboration with OMS researchers and doctors worldwide, has embraced the approach of holistic treatment of OMS. He has aligned a team of experts of varying disciplines to assist families in addressing issues with oncology, neurology, physical, speech, and occupational therapies, nutrition, and school placement and programs.
Tony Tzoubris, Pediatric OMS Research Fund, Chicago Illinois. Tony, in his collaboration with The Dancing Eyes Syndrome Trust in London, England, has been a leader is bringing the OMS medical community together. With Tony’s assistance, this group has hosted multiple OMS medical conferences with leading OMS experts from around the world, enabling collaboration at a greater level than would normally occur for a rare disease.
We applaud the contributions that these three individuals and their organizations have done to progress the collaborative efforts in research, treatment, and life skills for our OMS warriors. Congratulations to the recipients of the 2012 recipients of the Annual OMS Teddy Bear Drive Fundraiser.
Your online donations will be directed to these three recipients.
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